I don’t think I posted here about it but I’m sure I tweeted about Kobi’s “thing”. So, for the past few months he does this head tilt. He leans his head to the right and lifts his right should up simultaneously. All day at random times. At first we thought it was just something cute but we then decided it was something weird. He was do it his highchair, when we’re holding him, when he’s playing, etc. No specific time of day or during a certain act. We tried not to make a big deal about it but continued to watch him closely.
When I took him in for his 9 month checkup, we brought it up to his Pediatrician. Right when we were explaining it, he proceeded to show her himself. Quite a few times actually. She took notice of it. She checked his ears and they were clear. No ear infection. She checked his eyes and they seemed fine as well. She told us not to get worked up about it but to keep an eye on it.
No sooner that I had got back to work later that day, I had an email from her. I guess it bothered her enough that she asked a few colleagues and they didn’t seem OVERLY concerned but thought it would be safe to send me to a Pediatric Neurologist.
So, that’s where we ended up last Wednesday. We had 3 doctors in the room. They did the usual check of his weight and head circumference. Then they asked us one million questions. We explained that he still did the “thing” but it seems to be more often now. They poked and prodded. He giggled and babbled. They checked his reflexes, is strength, this length, his motor skills. Everything seemed fine.
Then they saw him do the “thing”. They all kind of looked at each other. They all went out to discuss the possibilities and brought in the real doctor. It was like a scene from House where the other doctors try to figure things out on their own and when they are baffled the big dawg comes in with all his expertise. Except our doctor was old. Really old. But didn’t have the cane like House, or the sarcasm. No, he was a really sweet old man and seemed to know what he was talking about.
He thinks that it just may be one of Kobi’s quirks. If so, I’m ok with that. But he did say that we have to give my son an EEG. They will hook him up to a machine that will monitor is brain waves. Scary. He said that they want to rule out any silent or mini seizures.
Yes please, let’s go ahead and rule that out. I was worried that I wouldn’t get an appointment for weeks but turns out they wanted to get him in quickly. I don’t know if I should be worried or relieved. So, either way his appointment is Wednesday. Wish us luck and perfect brain wave activity.
Also, any of you ever experience anything like this? What was the outcome?
Two decades later
12 hours ago